1 in 150

Feb. 9th, 2007 10:55 am
miss_yt: (Default)
[personal profile] miss_yt
So, according to findings from a recent study by the CDC, about 1 in 150 American children (on average) has some form of autism. That's a lot higher than previously thought. What I'm wondering - and haven't been able to figure out yet - is how many of these autistic kids have Asperger's or other "high-functioning" forms of autism, and how many have severe social and/or verbal handicaps. From what I can infer, most of the kids on the autism spectrum fall into the former category, because it was apparently somewhat difficult to discover them. If most of these 1 in 150 kids had impaired function in some area, I think we would have noticed the prevalence of autism before now.

I think these numbers are significant, not because they indicate a "crisis" or (cringe, whimper) an "epidemic," but because they illustrate that, while autism certainly isn't the norm, it isn't all that weird or rare either. Chances are, you or your children know someone with autism (like me, for instance). And, even more significantly, it indicates that there must be some kind of evolutionary advantage to having individuals with autism sprinkled liberally throughout the human population. If there weren't, there wouldn't be so many people with Asperger's or other mild forms of ASD.

Autism is all about brain architecture. Nobody's quite sure what causes the differences between autistic and "neurotypical" brains, but basically what happens is that one part of the brain - the part that's involved in social behavior - doesn't develop as much as it should. The usual trade-off is that other parts of the brain tend to overcompensate for this deficiency, so you get people who can do rocket science but have trouble carrying on a conversation.

Social skills - the ability to communicate, bond, form groups, work together - is an important human trait, as crucial to the species' survival in modern times as it was back when we lived in caves and hunted the woolly mammoth. But the ability to dream, innovate and focus obsessively on getting the details right is also important. There are a few people who can do both well: most of us have to do one or the other, and any human population needs both kinds of people.

I support autism research, so that children with ASD of any kind will be lucky enough to get the support I did, to understand themselves and to lead successful, fulfilling lives. But I don't think we should be looking for a "cure" for autism, if such a thing is even possible. I think we have something that the rest of the world needs.

Date: 2007-02-10 01:02 am (UTC)
From: [identity profile] nightengalesknd.livejournal.com
I don't have numbers for you but can tell you that the majority of kids with ASD dxs are on the "milder" or "HFA" or "Aspergers" or even "PDD-NOS" end of the spectrum.

I can also tell you that I don't believe the 1/150 number (nor did I believe the 1/166 one.) Not that I have a better figure to offer. Just instinct.

And the LOOKS I get from the medical community when I say I want to work with kids with autism and I have no interest in a cure. . .

Date: 2007-02-10 01:39 am (UTC)
From: [identity profile] miss-yt.livejournal.com
I don't like it when people talk about finding a "cure" for autism, or how people seem to think of a diagnosis of Asperger's or PDD is basically a seal of doom. True, it's challenging to deal with, for both the kids and the parents, but it's not nearly as horrible as people are making it out to be. I should know.

Date: 2007-02-12 12:24 pm (UTC)
From: [identity profile] nightengalesknd.livejournal.com
Yup. The one thing I don't like in an otherwise simply WONDERFUL developmental pediatric rotation right now is that my professor thinks of giving parents an autism dx as "bad news." She's great with the kids and the parents themselves and doesn't say anything insulting or anything (even backstage) so I really shouldn't complain too much. She's definitely not a CAN or DAN "curebie."

Which isn't to say that I don't think most parents are upset to hear the diagnosis, and that doctors shouldn't be empathetic to that. Parents often go through a grief reaction for the child they expected. But parents also love the child they have and can move to a really positive place over time and I think we need to support that also.

Date: 2007-02-10 08:32 pm (UTC)
From: [identity profile] alashiya.livejournal.com
I'd never have known you're autistic, you're very good with words! Dan's about halfway between you and the poor souls who can't speak at all. He'd be happy to find a cure and be like the other guys.

Date: 2007-02-10 08:44 pm (UTC)
From: [identity profile] miss-yt.livejournal.com
People with Asperger's tend to be very verbal. Our problem is not having trouble talking, but having trouble shutting up.

Date: 2007-03-02 03:07 pm (UTC)
aberrantangels: (Asperger syndrome)
From: [personal profile] aberrantangels
Slack here (from the crackbar and associated chat), and I'm an aspie too. Which is probably what makes my geek fu strong enough to qualify for the praise you gave me the other night in chat. (I suspect Stephenson is also an aspie, and that William Burroughs and Douglas Adams [among other writers whose styles resonate with me] may have been.)

Date: 2007-03-02 03:13 pm (UTC)
From: [identity profile] miss-yt.livejournal.com
Hey, welcome to the madhouse!

I'm not really surprised that you're an aspie, in part because of your impressive geek fu, but also because among the people in [livejournal.com profile] milliways_bar you'd probably be hard-pressed to find someone who isn't an aspie.

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